I’ve written before about Bisphosphonate Induced Osteonecrosis of the Jaw (BIONJ), which I was diagnosed with back in June of 2020, and you can read about that here. From what I am hearing from a variety of doctors, there are more cases of BIONJ since those of us with MBC and other metastatic cancers are living longer. It’s odd to think about the cons/negatives of living longer, but I think what it exposes is even more fascinating — I believe that the doses of the bisphosphonates might be too high if we are living longer.
Because of speaking up about BIONJ and my diagnosis, that sometimes attracts attention from others, particularly those in the press. I had the opportunity to speak with Diane Mapes, who writes for Fred Hutch, about some new research into bisphosphonates and BIONJ and am quoted in her article here.
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